CNN
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The US National Institute on Aging is moving forward with efforts to create a real-world Alzheimer’s disease database as part of its mission to improve, support, and direct more dementia research.
Last month, the agency, part of the National Institutes of Health, Post a notice of donation For the six-year database project, it sets its earliest start date as April 2024.
The NIH confirmed Tuesday that plans to fund a real-world data platform on Alzheimer’s disease and Alzheimer’s disease-related dementia are underway.
The National Institute on Aging intends to commit $50 million per year beginning in fiscal year 2024 to an award.
Among those planning to apply for grants is the nonprofit Alzheimer’s Association
“The newly announced NIA funding for a large-scale Alzheimer’s disease research database is really exciting and a very important step for our field, and the Alzheimer’s Association will be applying for that grant,” said Maria C. Carrillo, the Alzheimer’s Association’s chief science officer, said in an email Tuesday.
“The association is already leading ALZ-NETwhich is a national network of clinicians collecting data — including measures of knowledge, effectiveness and safety — for patients treated with new FDA-approved Alzheimer’s treatments,” Carrillo said. “NIA funding can expand ALZ-NET’s reach to benefit all stakeholders. .”
He added that the Alzheimer’s Association believes everyone should have access to treatment regardless of their registration status.
The real-world database aims to transform Alzheimer’s disease research institutions by “serving as a central hub for research access.” National Institute on Aging Dr In a webinar announcement about the project scheduled for April 19 last week.
According to the announcement, the Data Registry aims to provide a comprehensive and diverse database that “can improve the applicability and generalizability of findings,” can be used as a tool for researchers, and allow scientific questions to be answered more quickly.
Last year, the National Institute on Aging convened an exploratory workshop to discuss real-world data gaps and opportunities to expand real-world data sources for dementia research.
Alzheimer’s disease, a Brain disorders that affect memory and thinkingThe most common form of dementia, says the NIH.
According to the Alzheimer’s Association, more than 6 million Americans are living with dementia caused by Alzheimer’s disease, and the number of affected people is projected to double over the next two decades, reaching 13 million in 2050.
